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‘Inclusion is strength’ stresses UN, marking Albinism Awareness Day

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‘Inclusion is strength’ stresses UN, marking Albinism Awareness Day

Persons with the condition – which is caused by a lack of melanin pigmentation, affecting skin, hair and eye colour – continue to face an uphill battle to attain a life with dignity and equality, said Muluka-Anne Miti-Drummond, the UN Independent Expert on albinism. 

“My clarion call today is for Governments, UN counterparts, civil society organisations, influencers, community members and all stakeholders to reach out to persons with albinism and ensure their voices are heard – to form new partnerships and strengthen existing ones,” she said in a message to mark International Albinism Awareness Day on Tuesday. 

Worldwide representation 

Albinism is a rare, non-contagious, genetically inherited condition that is present at birth. It is found in both sexes regardless of ethnicity and in all countries worldwide.  

Albinism is much more prevalent in sub-Saharan Africa, with estimates of one in 1,400 people being affected in Tanzania, according to the UN.   

Prevalence as high as one in 1,000 has been reported for select populations in Zimbabwe and for other specific ethnic groups in Southern Africa. 

Cancer and other dangers 

Almost all people with albinism are visually impaired and prone to developing skin cancer.   

They also face discrimination due to their skin colour, meaning they are often subject to multiple and intersecting discrimination on the grounds of both disability and skin colour. In some cultures, they have been killed for their body parts. 

Over the past decade, UN human rights entities have received reports of more than 600 attacks against children and adults with albinism. Witchcraft was identified as one of the root causes of these attacks, as some believe that the body parts of people with albinism can bestow good luck or wealth. 

Diversity and collaboration 

This year, the International Day is being celebrated around the theme of “Inclusion is Strength”, which upholds the importance of diversity – both within and outside the albinism community. 

Specifically, it highlights the value and benefits of including a broad spectrum of persons with albinism in albinism-related discussions, such as young people, women, children, older persons and LGBTQ+ persons of all races and ethnic backgrounds. 

It also calls for collaborating and embracing albinism within the disability movement, and in other sectors where decisions affect persons with the condition, as well as teaming up with other groups outside the albinism movement, such as those working to advance human rights

Translate policies into action 

“Today, we have the opportunity to pause, reflect and remember that not all persons are treated equal, and that many persons with albinism continue to suffer human rights abuses and violations, often invisibly and in silence,” Ms. Miti-Drummond said. 

She was adamant that persons with albinism cannot be excluded or left behind when it comes to decisions affecting them, stressing that human rights laws, policies and dialogue, must include issues relating to albinism.  

“More critically, these must translate to actions and tangible results,” she said. 

“Such a journey for inclusion should not be difficult given the myriad of human rights commitments States and stakeholders have undertaken at the international, regional, and national fora,” she added.  

“Human rights mainstreaming is a common mantra, and the challenges faced by persons with albinism can be eliminated through strengthened partnerships and collaboration.” 

 

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Kakhovka dam disaster a health crisis in the making: WHO

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Kakhovka dam disaster a health crisis in the making: WHO

WHO’s representative in Ukraine Dr. Jarno Habicht told reporters that after the collapse of the dam caused severe flooding and massive displacement, the agency’s primary concern was the potential outbreak of waterborne diseases such as cholera and typhoid, as well as rodent-borne diseases.

The agency’s teams were monitoring the situation on the ground and were ready to scale up support, he said.

Water and food security fears

Dr. Habicht noted that back in the spring, WHO had provided cholera kits to people in the Kherson region and neighbouring areas “as a preventive measure”. Water safety messages were being shared in collaboration with the Ukrainian Ministry of Health on social media, along with information materials on how to avoid getting sick from contaminated water.

But the situation was evolving fast, Dr. Habicht said, and hundreds of thousands were in need of drinking water.

He also pointed out that WHO and partners in the field were monitoring the long terms impact of the release of hazardous chemicals into the water. Food security was another major concern in the flooded settlements.

As of Monday, the UN and partners had delivered water, hygiene items and food to nearly 180,000 people in the affected areas, according to the UN aid coordination office (OCHA).

Dr. Habicht also informed of ongoing discussions with the authorities on pipelines to support neighbouring cities like Kryvyi Rih and Mykolaiv, which are experiencing water shortages.

‘Emergency within the emergency’

The WHO representative described the mental health toll of the devastation on the population as “significant”, explaining that the Dnipro River was very frequented by locals in the summer and that the humanitarian disaster in the area “ruptured people’s memories”.

The situation has compounded the population’s distress following months of attacks on civilian infrastructure and a “dark and cold winter” amid power cuts, Dr. Habicht said.

Overall, there were more than 10 million people in the country with mental health needs. “It is an emergency within the emergency,” he stressed.

Access to care

Dr. Habicht also flagged the lack of care for non-communicable diseases, with many health facilities flooded and water and electricity supply issues impacting the cold chain. He said that the water damage had similar effects on health facilities as last October’s Russian strikes on the country’s energy infrastructure. Many elderly people in the area were at particular risk due to the lack of care.

Medical supplies, including pneumonia kits and pediatric kits, were part of the humanitarian convoys to Kherson last week and this week, Dr. Habicht said. WHO and partners were also assessing needs related to the restoration of health facilities.

Working as one

Describing the organization of operations on the ground, Dr. Habicht underscored that the whole UN was working together under the leadership of Resident and Humanitarian Coordinator Denise Brown, and that every day a coordination meeting was held on how to best support hundreds of thousands of desperate civilians together with the Government of Ukraine and partners.

He also recalled that there was still no humanitarian access to the parts of the affected areas occupied by Russia, and that security guarantees needed “to go there and save lives” were currently being discussed. 

Attack on Kryvyi Rih

Meanwhile, a Russian missile attack on the city of Kryvyi Rih in Ukraine’s Dnipropetrovsk region hit a residential building on Tuesday according to media reports, killing at least 11 civilians.

The central Ukrainian city is the home town of President Volodymyr Zelenskyy.

Denise Brown condemned the attack, saying that “Russia’s invasion has, once again, claimed lives and brought suffering to the people of Ukraine”, and insisting that civilians and civilian infrastructure should never be a target, in line with international humanitarian law.

The city has also been impacted by the Kakhovka dam destruction as water supply to residents has been severely limited.

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The “floating” highway that changed US history

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Stretching 111 miles into the open ocean, this engineering marvel connects the outlying islands of the Florida Keys to the mainland and forever changed more than just Florida

Traveling from Miami to Key West, Florida wasn’t always as carefree as it is today. In the early 20th century, the only way to reach the southernmost point of the continental United States was a day trip by boat, which depended on weather and tides.

But thanks to the stunning engineering marvel known as The Overseas Highway, which stretches 181 km miles from the southern tip of the continent through 44 tropical islands across 42 bridges, travelers seem to float along a necklace of mangroves and bays as they drive to the place, where North America and the Caribbean meet.

The Oversea Highway actually began construction as the Over-Sea Railroad and was the work of visionary Henry Morrison Flagler (known as the “Father of Modern Florida”).

In 1870, Flagler co-founded the Standard Oil Company with business magnate John D. Rockefeller, and it became one of the largest and most powerful corporations in the world at the beginning of the 20th century.

After visiting Florida and recognizing the tourist potential of the “Sunshine State”, Flagler poured much of his wealth into the region, building luxury resorts that turned one of the poorest states in the US into a winter paradise for tourists from the US Northeast from The Golden Age. However, guests have not been able to reach Flagler’s rich but remote resorts.

Thus, in 1885, Flagler connected a series of broken railroads along Florida’s Atlantic coast from Jacksonville, at the northern tip of Florida, to Miami, near the southern tip of the state. Miami was supposed to be the terminus of the line, but when the United States began construction of the Panama Canal in 1904, Flagler saw enormous potential for Key West, the closest American piece of land to the canal and the deepest port in the southeastern United States.

The bustling center was already thriving thanks to the production of cigars, mushrooms and fishing (by 1900 Key West was the largest city in Florida), but the island’s remote location made it difficult and expensive to transport goods north.

So Flagler decided to extend his route 150 miles (251 km) south to Key West, mostly over open sea. This so-called expansion was considered impossible by many of his contemporaries, and his vision was called “Flagler’s Folly” by his critics. Between 1905 and 1912, three hurricanes hit the construction site, killing more than 100 workers. Undeterred, Flagler pressed on.

The railroad took seven years, $50 million ($1.56 billion today) to build, and 4,000 African-American, Bahamian, and European immigrants who had to battle alligators, scorpions, and snakes while toiling in harsh conditions.

When the railway was finally completed in 1912, it was called the “eighth wonder of the world”. During the first launch of the Key West train from Miami, the then 82-year-old Flagler stepped out of his personal luxury carriage (which can be seen at the Flagler Museum in Palm Beach) and allegedly whispered to a friend, “Now I can die happy. My dream is fulfilled.”

The fact that Flagler funded more than $30 million out of his own pocket is remarkable,” says Florida historian Brad Bertelli. “Jeff Bezos or Bill Gates could do it today. Elon Musk with his SpaceX may be the best modern comparison.”

The railroad operated until 1935, when the deadliest hurricane in a century swept away miles of tracks. Instead of being restored, Flagler’s masterpiece was reshaped to accommodate America’s newfound love of cars.

In 1938, the US government set out to build one of the world’s longest causeways, relying on Flagler’s seemingly indestructible bridges that could withstand 200 mph winds. Crews laid the tracks so cars could run, and the newly opened Overseas Highway forever transformed the remote islands of the Florida Keys into the thriving tourist destination they are today.

More than a century after the railroad was completed, 20 of the original bridges still carry passengers from Miami to Key West. You can cover the distance in less than four hours, but getting around on the way is part of the fun. A series of fascinating, unusual stops help travelers better appreciate how this engineering marvel came to be and its lasting impact on the Florida Keys.

Key Largo is the northernmost part of the Florida Keys, 70 miles south of Miami, and is a great first stop. Alligators, snakes and other aquatic life may have terrified Flagler’s construction crews, but these days travelers come to Key Largo (the self-proclaimed “diving capital of the world”) to marvel at the abundant marine life. The Florida Keys National Marine Sanctuary, adjacent to John Pennekamp State Park, attracts scuba divers looking to dive into North America’s only living barrier reef.

The seagrass here is vital for fish, manatees and sea turtles, but the main attraction is swimming in the outstretched arms of Christ of the Deep, a submerged three-metre bronze statue of Jesus that has watched over visitors since 1965.

After this adventure, visitors head to Islamorada, a community located halfway between Miami and Key West that once housed a Marine Railroad station. Here at the Keys History and Discovery Center, a 35-minute documentary tells the story of the railroad’s construction and the many obstacles it encountered. The museum also displays artifacts from the train’s golden era, including dishes from the dining car, as well as an original menu where a steak cost $1.60.

  From 1908 to 1912, about 400 workers lived in a camp on Pigeon Key, a small coral island located 56 km south of Islamorada, while they built the most difficult part of the Oversea Railway – the famous Seven Mile Bridge (colloquially called ” The old seven”), which connects Middle and Lower Key.

In 1909, civil engineer William Jay Krum was tasked with the daunting task of crossing 10 kilometers of open water. Construction crews are working around the clock, driving more than 700 piers into the middle of the ocean, sometimes almost 9 meters below sea level, to build the world’s longest bridge. They are assisted by divers who help create underwater concrete footings to support the weight of the railway.

The remains of the old construction camp can be reached by taking a tourist train over the old bridge from the town of Marathon to Pigeon Key. A 3.5 km section (the only accessible section) reopened in January 2022 after a five-year, $44 million renovation. Closed to other vehicular traffic, the once crumbling bridge is now a safe playground for those who want to ride a bike or rollerblade 19 meters above the crystal clear water or watch marine life such as sea turtles and sharks.

Today, only four permanent residents live on Pigeon Key. The five-acre island is now a National Historic Landmark and is powered primarily by solar energy. It’s also home to a museum that offers guided tours of several buildings that once housed the workers and tells the story of what daily life was like for the crew who built the Seven Mile Bridge.

Travelers along the length of the Overseas Highway today know the trip is over when they see US Mile 1 in Key West.

The sign marks the southernmost point in the contiguous US, meaning travelers are now closer to Cuba (144 km south) than Miami (212 km north). But while many visitors head straight for the city’s main drag, Duval Street, or the Ernest Hemingway House and Museum, the small but informative From Sails to Rails Museum is worth checking out.

Parliament adopts its calendar for 2024 | News

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Parliament adopts its calendar for 2024 | News

Next year, Parliament is scheduled to hold 14 plenary sessions, of which eleven are four-day sessions in Strasbourg, two are two-day sessions in Brussels, and a single one-day session commemorating Holocaust Remembrance Day in Brussels.

European Parliament elections will take place between 6 and 9 June 2024.

The dates are as follows:

  • January 15 to 18
  • January 25
  • February 5 to 8
  • February 26 to 29
  • March 11 to 14
  • April 10 and 11
  • April 22 to 25
  • July 16 to 19
  • September 16 to 19
  • October 7 to 10
  • October 21 to 24
  • November 13 and 14
  • November 25 to 28
  • December 16 to 19

The full calendar will be available here soon.

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More circular economy needed to make European consumption sustainable

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